Patient-reported outcomes are becoming increasingly recognized as a key component of quality care. Patient-reported outcomes refer to information on a patient’s health condition and care experience that comes directly from the patient without interpretation of their response by a clinician or other individual. This information is typically collected via questionnaires completed by patients known as patient-reported outcome measures (PROMs). PROMs can comprise information about symptoms, functional status, satisfaction, treatment adherence, and domains of overall well-being and quality of life.
This project aims to transform the delivery of care, and improve the health outcomes of pediatric solid-organ transplant patients in Canada by implementing patient-reported outcome measures (PROMs) as an innovative approach to clinical care in pediatric transplantation.
The project will contribute to:
The project is led by the Hospital for Sick Children (SickKids).
Dr. Samantha J. Anthony, Health Clinician Scientist The Hospital for Sick Children University of Toronto
“Voxe leverages eHealth technology as an innovative approach to capture the voices of children in clinical practice and to understand children’s perspectives of their illness experience.”
EXPECTED PROJECT COMPLETION IN 2022
The Organ Donation and Transplantation Collaborative is an initiative led by Health Canada with provinces and territories (except Québec), Canadian Blood Services, patients, families, clinicians and researchers. Funded by Health Canada, the project Implementation and Evaluation of a Patient-Reported Outcome Measure Platform in Pediatric Transplantation contributes to the Collaborative’s vision to achieve organ donation and transplantation system improvements that result in better patient outcomes and an increase in the number and quality of successful transplantations. For more information, please consult the Organ Donation and Transplantation Collaborative (the Collaborative) website: https://tinyurl.com/ODTCollaborative.