Community Counts: Understanding hemophilia and other bleeding disorders through public health surveillance

Over the past 20 years, the Centers for Disease Control and Prevention (CDC) has conducted public health surveillance to better understand the characteristics and complications that impact the bleeding disorders population. Community Counts is a public health surveillance program that gathers and shares information about common health issues, medical complications, and causes of death that affect people with bleeding disorders cared for in U.S. Hemophilia Treatment Centers (HTCs). Community Counts is funded by CDC through a cooperative agreement awarded to the American Thrombosis and Hemostasis Network in partnership with the U.S. Hemophilia Treatment Center Network.

In this presentation, Drs. Dupervil and Byams will provide an overview of Community Counts, its components, and its role in monitoring important health outcomes. They will present key findings on the occurrence of bleeding disorders, and information collected to date on population demographics, clinical characteristics, and other health indicators. They will share plans for ongoing and future work using data to track health outcomes over time.

Presented by 

Brandi Dupervil, DHSc, MPH
Epidemiologist, Epidemiology and Surveillance Branch, Division of Blood Disorders, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention 

Vanessa R. Byams, DrPH, MPH
Lead Health Scientist, Epidemiology and Surveillance Branch, Division of Blood Disorders, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention 

Skye Peltier, MPH, PA-C
Clinical Consultant, American Thrombosis and Hemostasis Network Clinical Co-Director, Children's Minnesota, Center for Bleeding and Clotting Disorders

Learning objectives

1. State the three components of Community Counts.
2. Describe the use of public health surveillance to better understand and improve the health of people with bleeding disorders. 
3. Describe key findings from Community Counts. 

Registration

This webinar is free and open to health-care providers, pharmacists and public health researchers who desire more information about bleeding disorders. Additional event details and a registration link are available on the Centers for Disease Control and Prevention website Blood Disorders Webinar - Save the Date | CDC.